Tuesday, September 18, 2012

Here we go...

All right, there are at least 7 of you who read this, so these updates are for you...

Well, it is after midnight, so today is the day.  I'll be in the hospital in less than 6 hours where they will get me all hooked up to my IV and start that lovely Pitocin flowin through my veins.  I think anxious would be the appropriate word.  I am excited, but there is certainly some anxiety too (hence I am awake again).

It seems I have still failed to fill some people in on the situation so here is the I-need-to-get-back-to-bed-summary and you can fill in the holes with your own research or just wait for updates.  (Please don't pay any attention to my grammar, I should be sleeping and so this is a mind spill not a refined document.)

At my 18 week ultrasound the doctor found that our sweet baby has a condition called gastroschisis.  That means that in her development something went wrong with the formation of her abdominal wall and there is a defect site where it is not closed and some of her bowel is outside of her body.  We are fortunate in that it is only small intestine out, but it seems that the quantity is increasing.  To prevent damage to the bowel (resulting in loss of bowel and long term complications) I will be induced at 33 weeks.  This little lady will have her first surgery within a couple of hours of birth and we will learn a lot more about the condition of her intestines after birth and that first surgery.  Many babies have only that first surgery, but we are choosing to be prepared for more because I prefer pleasant surprises.  She will head straight to the NICU after birth and then to surgery but hopefully we'll get a glimpse of her sweet face somewhere in the chaos before surgery...if not, we will have MANY hours in the NICU to come with ample opportunity to stare helplessly as we hope she progresses, grows and knows we love her.  There is no timeframe for how long she will be in the NICU (so stop asking :o) it could be weeks or months and only time and progress will tell.  We'll keep you posted with stats and hopefully you won't get sick of this one topic blog that will exist for a while. 

So tomorrow is a big day.  We are so grateful for prayer and knowing that we have a loving Heavenly Father who cares for us and our baby.  We know she is in His hands and that that is the safest place to be.  Thank you for all the prayers you have and will yet say in our behalf, we truly feel the power and peace that comes from those prayers and your great faith. 

6 comments:

Michael Rogers said...

Good luck, Miller Crew - But specifically Kristen. :-) We sure do love ya and will anxiously await your updates. I'll have her on mind all day - she's being prayed for lots!

Rachel Burt said...

Praying for you and your sweet baby.

Deanna said...

Millers, we miss you guys so much. Thank you for the detailed yet not so detailed update. It all makes sense and I have been doing some research so I can better understand your situation. I like to be detailed with my prayers and thoughts and doing the research on my own helped me develop a detailed prayer to Heavenly Father on your behalf. I wish you and baby both a healthy recovery, whether fast or slow. I am happy that in light of this situation you still sound optimistic about it all. You are wonderful and god will continue to bless you and your family.

Ross, Christy, Caden, and Coby said...

We'll be thinking and praying for your family today. There is so much peace from knowing that we have a loving Father in Heaven who loves us and especially his precious little ones. Thank you for your example of faith.

B.E.A.T.L.E. said...

our prayers are with you guys. Always!

Heather said...

Congrats to the recent birth, and good luck! We'll be eagerly following your baby's progress. I (Logan) follow the gastroschisis babies at our hospital on the radiology side of things. Seems like there's usually one or two.